Arizona Online Support Group

ArizonaLyme
is an online discussion group at Yahoo Health Groups
 click below (will open a new page/tab)

This is a reference and support group for Lyme (and associated diseases) patients, their care givers, medical professionals, and anyone else interested in knowing more about this disease and how to cope with it. We are a service of the Arizona Lyme Disease Association AZLDA.

 

 
Larry and Marie presenting Dr.Cowden with an appreciation plaque for his talks on autism
and Lyme Disease treatment protocols at
the Tucson support groups meeting Jan. 2009.
 
To see more photos of this
and other events

MEETING INFORMATION:

 

Please refrain from wearing fragrances to the meeting,
in respect to our chemically sensitive members.

SPECIAL Meeting Notice


 

Phoenix Chapter

NEW MEETING GROUP IN TEMPE

                                                           Monthly support meeting:

 

Pyle Adult Recreation Center | 655 E. Southern Ave. | Tempe, AZ 85282
602-635-0005www.tempe.gov/pyle
*Southwest corner of Rural & Southern

Tempe Support Group Meeting

1st Saturday of each Month 1-3pm

2018

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TBA 2018

 

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Our website is: www.azlyme.org
 

Questions can be emailed to: azlymedisease@gmail.com 
 
The Facebook group is Arizona Lyme Disease Association Support Network. Please follow us on Facebook also, at Arizona Lyme Disease Association

For more information please contact: Michelle.Louie@azlyme.org 

Tucson Chapter
                                                           Monthly support meeting:

 

The first hour is dedicated to an educational topic,
the second hour is for group and emotional support.

Location: River Center Branch Library. Library is located at 5605 E. River Rd
Located at the northeast corner of River and Craycroft, on the
ground floor section on the northeast corner of the shopping strip.
Tucson area information-    Email:

Wellness First located at 3861 N. First Ave., Tucson, AZ

Wood Memorial Library 3455 N 1st Ave, Tucson, AZ


2018 Schedule
 
PLEASE NOTE:
Meeting locations may vary:
 
WOODS MEMORIAL LIBRARY
3455 N 1st Ave, Tucson, AZ 85719.
 
Dusenberry River Branch Library
5605 E. River Road
Tucson, AZ
(meetings at Dusenberry Library are 2-4 pm)
or
Wellness First
3861 N. First Ave.
Tucson, AZ
(meetings at Wellness First are 3-5 pm)
 
LOCATING OUR MONTHLY MEETINGS IS EASY
Please check the meeting reminders to find the location and time of the meeting you plan to attend.
Our meetings generally take place at one of locations:

WOODS MEMORIAL LIBRARY, 3455 N 1st Ave, Tucson, AZ 85719.
2-4pm We will meet in the small conference room
 
Dusenberry River Branch Library, 5605 East River Road, (Northeast Corner of River and Craycroft, on Ground Floor Section of Whole Foods Strip Mall.)
Meetings at Dusenberry River Branch Library are scheduled from 2pm til 4pm unless otherwise noted.
 
Wellness First, 3861 N. First Avenue
(the address is the only signage on the building...look for LARGE NUMBERS on WEST SIDE of road) Location is one block south of Roger Road on the west side of First Avenue. There is a large patio wall with address visible from the street. Also, there is a red mailbox right next to the driveway.
 

  • 2019
  • UPCOMING SUPPORT GROUP MEETING

    ---------------------------
     

    Tucson Lyme Association Will Gather on Saturday, June 8th
     

    at the Woods Memorial Branch Library, at  3455 N 1st Ave in Tucson, from 2pm-4:00pm. 
    As always, in respect for our chemically sensitive members, please refrain from wearing fragrances to our gatherings.

    Upcoming Meetings
     

    Saturday, June 8, 2019
    Location: Woods Memorial Library
    2-3 PM: Review and discussion on the key findings of

    www.MyLymeData.org led by group member Frances Lunney.

    191 people enrolled who have listed Arizona as their state of residency

    Let have a goal of doubling this number by the end of the year. Help spread the word that this data collection/study matters for all of us.
    3-4 pm: Support and Sharing

    ****************************
    July 13, 2019

    Location: Woods Memorial Library
    2-3 pm: topic TBA
    3-4 pm: Support and Sharing
     

    August 10, 2019

    Location: Woods Memorial Library

    2-3 pm: Topic TBA

    3-4 pm: Support and Sharing
    ************************************************************
    PLEASE  DIRECT ALL REQUESTS FOR INFORMATION ABOUT THIS EMAIL AND OUR TUCSON GROUP TO OUR CONTACT PERSONS JANE or PAULA. Paula may be reached by email at paulaazlyme@gmail.com, and Jane by phone at (520) 529-0221. They can also help to see that your name will be placed on our Contact eList, ensuring that you will receive future monthly communications from our group.  Both are great resources!
    *****************************
    ITEM STILL NEEDED: Office type projector that could be donated to the Woods Memorial Library, where our group often meets.   To donate please contact Marie at 520-888-3646, Thank-you!
    *****************************
    ONGOING RECOMMENDED WEBSITES
    The first three websites have links to help find medical providers:
    www.lymediseaseassociation.org,
    www.ilads.org
    www.lymedisease.org.
    www.AzLyme.org
    www.globallymealliance.org
    www.betterhealthguy.com
    www.danielcameronmd.com
    www.enviromentalanalytics.net For mold and indoor air quality testing  
    https://natcaplyme.org/prevention/#preventing-tick-bites
     You may want to share this site with friends and family!
    https://www.facebook.com/WhenYourChildHasLyme/?
    https://www.iseai.org The International Society for Environmentally Acquired Illness
    www.https://lymediseaseassociation.org/about-lyme/lyme-kids-a-schools.

    This site offers practical guidance on how to prevent, screen, treat, and educate children about Lyme Disease.
    *********************

    PLEASE ENCOURAGES ALL YOUR PHYSICIANS TO TAKE THESE FREE CME, CONTINUING EDUCATION ON LINE COURSES ON LYME DISEASE. Physicians need to take a certain number of CME courses each year to keep their licenses current. https://www.lymecme.inf

    ****************************

    LYME in the NEWS and HEALTH LINKS
    1.  www.capvet.org/maps.
    Go to this website and hover over and click on various parts of any state.  You can see the incidence of Lyme in dogs for each county.  The actual incidence is a least 30 times that of what's diagnosed and reported on the map, since they are testing a limited number of dogs.  If you sign up, you will receive a similar email monthly. It's helpful data to show to providers who may insist that we don't have Lyme in Arizona.
    2. https://www.facebook.com/drrichardhorowitz/posts/217288205280058
    Biofilms and stationary phase persister forms of Bb are resistant to commonly used antibiotics and can explain in part persistent symptoms.The recent papers that were just published in the International Journal of Medicine (International Journal of General Medicine 2019:12 101–119) and Healthcare (Healthcare 2018, 6, 129; doi:10.3390/healthcare6040129) outlines the importance of persister drug regimens, and confirm Dr Feng's research, but also highlights the overlapping factors responsible for chronic persistent illness in 200 patients with chronic Lyme disease/PTLDS where dapsone combination therapy was shown to be effective for 8 major Lyme symptoms:

    3.https://news.ncsu.edu/podcast/podcast-bartonella/?fbclid=IwAR24ldF3tKiYav__rpLgKpm6a9DfgVy5dJwz0xFlP_HXePZhCwHmDzsuN PODCAST with Dr Ed Breitschwerdt, one of the recipients of the 2018 Global One Health Award
    Bartonella is a bacteria most commonly associated with cat scratch disease, which until recently was thought to be a short lived– or self limiting in medical lingo – infection. Bartonella isn’t new. What is new is its increasing association with a wide variety of ailments, many of them chronic and some of them life-threatening. We talk with Ed Breitschwerdt, infectious disease specialist, doctor of veterinary medicine and Bartonella expert about what this bacteria can do and what researchers are trying to do about it.
    4.  https://iseai.org

    New medical group ISEAI.org , Co-founded by Tucsonian Mary Ackerley, MD.  ISEAI is a nonprofit professional medical society that aims to raise awareness of the environmental causes of inflammatory illnesses and to support the recovery of individuals affected by these illnesses through the integration of clinical practice, education, and research. 
    5. HTTP://DANIELCAMERONMD.COM/BORRELIA-SPIROCHETE-MASTERS-EVADINGIMMUNESYSTEMFBCLID=IWAR3BMQL6GKW6BGNTL0B8A9TLDODI9FKIAEA-EQ-CYFACC1QXRJLRJNZYGAY. Read about how the Borrelia spirochetes are masters at evading immune system.

    6. https://www.dailyfreeman.com/news/local-news/democratic-ny-senator-breaks-with-colleagues-on-lyme-disease-funding/article_2f9b0ba6-56e2-11e9-b1c7-07623fcb46be. htmlutm_medium=social&utm_source=facebook&utm_campaign=user-share&fbclid=IwAR36gJ_CYiAARCrkBY1Yk0Fh82Un7-UWR0Fb6SXaH_03kxseWlwRs9ZAPGs
    KINGSTON, N.Y. — State Sen. Jen Metzger says she's a strong
     

    supporter of public funding for Lyme disease treatment that Democratic colleagues of hers declined to include in the newly approved state budget.  “I strongly advocated for restoring the $1 million in funding for prevention and treatment of Lyme disease, which was included in the Senate's one-house budget, and I was extremely disappointed that the funding was cut from the final budget,” said Metzger, D-Rosendale. “This issue is a personal one for me. I live an active outdoor life, and I have been diagnosed with Lyme disease five times.

    7.http://www.wmh.org/news/tick-borne-disease-wellness-center-at-pike-family-healthcenter fbclid=IwAR2eZRaNp0LtpN61fQvmiHNqZusekmWtpTWfq45wzOQ1dQqFrmU3tBgzzEc
    The Tick-Borne Disease Wellness Center, located within the Pike Family Health Center at 750, Route 739 in Lords Valley, PA, will see its first patients on Wednesday, April 10th. Those who suspect they have Lyme disease can be seen for diagnostic testing and verification of a TBD. Additionally, patients who have already been diagnosed and are seeking advice for management of current symptoms are also eligible for care at the center. Patients must be age 18 or older and established with a primary care provider. Most major insurances are accepted. A sliding fee scale based on income is available for those who qualify. Out-of-state insurance verification is required. For more information or to make an appointment, call 570-775-7100.
    Wayne Memorial Community Health Centers is a clinical affiliate of Wayne Memorial Health System, Inc. Information on all of WMCHC’s services may be found by visiting www.wmchc.net or calling 570-253-8390.
     

    ********************
    RECOMMENDED BOOKS
    1.  “Lyme Disease Supercharge: The Revolutionary Approach to Getting Better When All Else Fails”  New book by Bryan Rosner; Published in March 2019 • 226 pages Published by BioMed Publishing Group
    2.“Beyond a Glass of Milk and a Hot Bath”
     

    by Connie Strasheim who battled severe insomnia for years. She shares insights and possible answers to this condition in her book, which is now out in paperback format. To learn more, see:https://conniestrasheim.org/new-products-
    3. “ Bitten: The Secret History of Lyme Disease and Biological Weapons”  by Kris Newby Hardcover – May 14, 2019

    While on vacation on Martha’s Vineyard, Kris Newby was bitten by an unseen tick. That one bite changed her life forever, pulling her into the abyss of a devastating illness that took ten doctors to diagnose and years to recover.
    4. “Toxic” by Dr. Neil MD, a resource book for patients and practitioners. Dr. Nathan has zeroed in on the reality of Toxicity and Chronic Disease, while providing cutting edge insights into the most effective therapies. This is a must read for anyone serious about healing chronic illness.
    5. “Lyme Disease Takes on Medicine” by Daniel Cameron (December 2017).
    6. “How Can I Get Better?”Richard Horowitz (February 2017).This guidebook helps individuals identify their symptoms, and figure out where to go next. It is a follow-up to “Why Can't I Get Better?”.

    7. “The Everything Guide to Lyme Disease” by Rafal Tokarz, PhD, associate research scientist at the Center for Infection and Immunity at Columbia. Explains the debate over "chronic Lyme disease."
    8. “Lyme:The First Epidemic Of Climate Change” by Mary Beth Pfeiffer (April, 2018)
    9. “Recipes for Repair: The Expanded and Updated Second Edition: A 10
    Week Program to Combat Chronic Inflammation and Identify Food Sensitivities” by Gail and Laura Piazza (2016)
    10. “The Ross Lyme Support Protocol: Lyme Disease Treatment Guideline for the Self-Starter” Kindle Edition by Marty Ross MD  
    ******************************************************************

    UPDATES FROM PROMINENT LYME ORGANIZATIONS:
    FROM www.ILADS.org (International Lyme and Associated

    Disease Society)
    ILADS is a nonprofit, international, multidisciplinary medical society dedicated to the appropriate diagnosis and treatment of Lyme and associated diseases through research, education and policy.
    1.https://www.ilads.org/ilads-conference/chicago-2018/
    42 minute video with Joseph Burrascano, MD "The History of Lyme
    Disease"
    2.http://www.ilads.org/lyme/lyme-quickfacts.php.
    Reviews Lyme Disease Facts. Short term treatment courses have
    resulted in the upwards of a 40% relapse rate, especially if treatment is delayed.
    3.http://www.ilads.org/education/member-publications.php.
    This Link will allow you to ILAD's download papers and presentations

    4.https://www.ncbi.nlm.nih.gov/pubmed/28887186.
    To test or not to test? Laboratory support for the diagnosis of
    Lyme borreliosis. 2018 Journal Publication. A Position Paper

    5.https://www.dovepress.com/aggressiveness-violence-homicidality-homicide-and-lyme-disease-peer-reviewed-article-NDT7

    Peer reviewed article on aggressive violence as it relates toLyme.
    6.  https://www.ilads.org/research-literature/lyme-disease-basics-for-providers/.
    Are your health care providers open or interested in learning more about Lyme Disease? Refer them to ILADS.org. Here they can also learn about the Lyme Fundamentals Course.
    7. The 20th Annual Scientific Conference will be held on Thursday, October 31 - Sunday, November 3, 2019, at the Westin Copley Place in Boston, MA.
    8.  https://www.ilads.org/research-literature/leading-research/
    Resource for published research articles authored by ILADS members.
    9.https://iladef.org/education/lyme-disease-faq/ Lyme Disease FAQ
    10. https://iladef.org/education/how-to-handle-a-tick-bite

    11. https://iladef.org/education/chronic-lyme-dos-and-donts/

    FROM   www.lymediseaseassociation.org (LDA):
    1. Need the name of a Lyme Literate MD or healthcare practitioner ?  This site will help you find one. The LDA offers information on all things Lyme including  ( but not limited to) symptoms, treatment, diagnosis, physicians, educational material, legislation, and policy making.  
    2.Http://rynoskin.com.

    Chemical Free Clothing for Tick Bite Prevention. Rynoskin is ultralight and worn underneath regular clothing. It  prevents ticks, mosquitoes, chiggers, black flies, ants, no-see-ums, and other biting insects from entering through clothing to reach the skin to feed/bite. Clothing items include: Shirts, pants, hoods, gloves and socks.

    3.  https://www.lymediseaseassociation.org/about-lyme/cases-stats-maps-a-graphs.
    Check out the numbers of Lyme Disease cases in the US.  
    LDA has educated multi-state officials from legislators to governors to health departments and continues to work with county and local officials who often are looking for ways to control tick-borne diseases in their specific areas, which may be more heavily endemic than the state at large.

    4.   https://www.lymediseaseassociation.org/images/NewDirectory/Resources/Printables/Current/LDA_SymptomList.pdf.

      Lyme Disease Signs and Symptoms updated2017
    5.  https://lymediseaseassociation.org/conference/prior-scientific-conference
    Lyme Disease Association Inc. 20th Annual Lyme/TBD Scientific CME Conference September 21-22, 2019 Philadelphia, PA
    The Lyme Disease Association has been providing fully accredited continuing medical education (CME) Lyme & tick-borne diseases conferences since 1999. Each conference has featured more than a dozen national and international researchers and physicians speaking on a wide variety of topics including epidemiology, the organisms causing tick-borne diseases, proteins, diagnosis, treatments, cognitive difficulties, vaccines, veterinary issues, ticks, and mapping of genomes.  
    6.  LymeAid 4 Kids Provided $345,400 in Grants Since 2004 Accepting Applications for 2019
    About LymeAid 4 Kids (LA4K) – The Lyme Disease Association started LA4K fund in 2003 and has helped children all over the U.S. and in Canada. Developed with the help of author Amy Tan, the fund is for children who do not have/receive insurance coverage for Lyme disease treatment for children and have economic difficulties. Donations can be made on-line to LDA help this LA4K fund as there are so many applicants, the fund does run out of money frequently.

    7.  http://r20.rs6.net/tn.jsp?f=001GIjSAeykguLcAxROTMva23ku7zkVNUlj6Ke4JJOd_9tQas6bnupPeCslPehfPsSvuHq0ggMP5T_QN8uLyS2CUsT5NEIA-CGkWHXI5BdO6ORmfv5pNQBPawklNTPYPIFviIBvHdJYr051WESy3uiOwoa__9n8y7z4bYS8pZw8C3N9dfnNsc28BwiSlTdYC5S&c=I3kdFzjdwUxWstZCS0vzj_UCI6sBGsGXh1drXnDOHJpxMSgm9gbs3Q==&ch=Z-u3eNvVWWWdWhb9asy_I6XKe9gtxVKeWf6rGKTntNweeO5Hj4e4Yw==
     

    In a new study appearing in the April issue of the journal Emerging Infectious Diseases, Diuk-Wasser and colleagues provide the most exhaustive local census of the new species to date. It suggests that the Staten Island infestation is far more advanced than previously known.

    In one park, the density of the ticks per 1000 square meters rose almost 1,698 percent between 2017 and 2018, with the number of ticks picked up in the sample area rising from 85 to 1,529.

    8.Tick Testing There are places where the public can have ticks tested.

    Check with the labs for proper packaging and mailing of the ticks, the types of organisms tested for and the associated costs (e.g., Lyme disease, anaplasmosis, ehrlichiosis)
    Here are some examples of tick-testing labs:
    IGeneX Labs, Palo Alto, CA: 800-832-3200  www.IGENEX.com See
    IGeneX Labs CLIA certificate   http://www.personalconsult.com/CLIA.pdf
    MDL, Mt. Laurel, NJ: 877-269-0090   www.mdlab.com
    NJ Labs, New Brunswick, NJ: 732-249-0148 http://njlabs.com/index.cfm
    Clongen Laboratories, Gaithersburg, MD 301-916-0173 https://www.clongen.com/
    Note: There are usually charges for these services. *From Lyme Disease Association’s LymeR Primer brochure.
    LDA does not make recommendations about whether people should have ticks tested, reliability of tick testing, or whether people should wait for the results before seeking/getting treatment. Those are decisions that need to be made after reviewing material on the topic and discussing the benefits/risks with a professional.

    9. LDA Provides Input to National Institutes of Health Strategic Plan Development

    The National Institutes of Health put out a request for information in February 2019 for stakeholders to submit specific comments that were to be submitted through an online form.  The NIH is developing a strategic plan to advance tick-borne disease (TBD) research and development over the next five years and beyond.


    FROM www.lymedisease.org. (LDo):
    Note: You can join lymedisease.org.  Members of LDo enjoy exclusive access to online issues of The Lyme Times, one of the most respected publications in the industry covering Lyme disease and other tick-borne diseases. This premier, quarterly magazine looks at issues that aim to educate and improve patients’ lives.
    1.    https://www.lymedisease.org/better-lyme-diagnostic-tests
    New Lab Tests for Lyme - Although the CDC has not promoted any improvements in testing since 1994, new Lyme Diagnostic tests are finally becoming available through private labs. One lab, IGeneX, has developed two new immunoblot test Improvements capable of detecting multiple species of Borrelia . The “Lyme ImmunoBlot” test is approved for use in all states including New York. The “TBRF ImmunoBlot” is currently undergoing validation review by New York State, Department of Health and thus is available to all US residents outside of New York. Go to the website above to view a list of the various species of Borrelia that the new tests are capable of detecting.

    2.  https://www.lymedisease.org/lyme-disease-symptom-checklist/

    Do you have Lyme Disease? Check your symptoms. 

    AzLDA's (Tucson Group) has used this LymeDisease.org message for a  public service billboard(s) along 1-10 near Eloy. A similar message was used on Speedway Blvd in 2017.  We recently rented anther 12x 40 ft. billboard along 1-10 in Eloy for May Lyme Disease Awarenss month. Last year the billboard stayed up 10 months thanks to Clear Channel. Each week approximately 82,000 people will pass it!
    3.  https://www.lymedisease.org/personalized-lyme-disease-treatment/
     34%of patients are high treatment responders (from mylymedata.org) —meaning that they reported that after taking antibiotics their symptoms improved moderately to a very great deal. This is the type of information that patients want to know and that is why LDo. conducted this study.
    4.  https://www.lymedisease.org/mylymedata-viz-blog/
    MyLymeData is one of the largest patient-driven registries in the nation, with nearly 12,000 patients enrolled. It was created by patients, is run by patients and will address the issues that Lyme disease patients care about. MyLymeData Viz provides the community with results from MyLymeData. If you are enrolled in MyLymeData, we thank you for providing the data that will accelerate the pace of research in Lyme disease. If you are not enrolled, please do so today. ****************************************************************
    Lyme Has Become an Epidemic/Pandemic.  You can learn more about Lyme
     

    in the United States and around the world at any of these websites:
    http://www.ncbi.nlm.nih.gov/pubmed/2648375
    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3879353/
    http://articles.mercola.com/…/07/25/lyme-disease-part-two.a…
    http://www.huffingtonpost.com/…/lyme---emerging-disease-o_b…
    http://www.rense.com/general53/plea.htmThe Disabling of a Nation http://www.samento.com.ec/sciencel…/4lyme/nationdiabled.html
    The New Undiagnosed Epidemic

     http://www.samento.com.ec/scienc…/…/Undiagnosedepidemic.html
    Lyme disease: a world-wide borreliosis http://www.ncbi.nlm.nih.gov/pubmed/3067922
    Epidemiological Features and Clinical Manifestations of Lyme Borreliosis in Korea, 2005-2012 http://www.ncbi.nlm.nih.gov/pubmed/25420645
    The Lyme Disease Pandemic  https://prezi.com/cmqno3gv8rki/the-lyme-disease-pandemic/
    Lyme disease: ancient engine of an unrecognized borreliosis pandemic? http://www.samento.com.ec/science…/…/lymediseasepandemic.pdf
    Delaware, Vermont have highest Lyme disease rates http://www.usatoday.com/…/2013/09/03/lyme-disease-…/2757071/
    Distribution of tick-borne diseases in China http://www.ncbi.nlm.nih.gov/pubmed/23617899
    Stage-structured infection transmission and a spatial epidemic: a model for Lyme disease http://www.ncbi.nlm.nih.gov/pubmed/18707444
    Epidemics of vector-borne diseases observed in infectious disease surveillance in Japan, 2000-2005 http://www.ncbi.nlm.nih.gov/pubmed/18239342
    Conspicuous impacts of inconspicuous hosts on the Lyme disease epidemic http://www.ncbi.nlm.nih.gov/pubmed/18029304
    Coinfections acquired from ixodes ticks http://www.ncbi.nlm.nih.

    gov/pubmed/17041141
    Epidemic and spatial dynamics of Lyme disease in New York State, 1990-2000 http://www.ncbi.nlm.nih.gov/pubmed/16363174
    Epidemic spread of Lyme borreliosis, northeastern United States http://www.ncbi.nlm.nih.gov/pubmed/16704808
    Advances in comparative pathology: some zoonoses threatening man http://www.ncbi.nlm.nih.gov/pubmed/15656242
    The first discovery of endemic Lyme disease in Shandong province http://www.ncbi.nlm.nih.gov/pubmed/11860804
    Lyme disease: self-regulation and pathogen invasion http://www.ncbi.nlm.nih.gov/pubmed/9745753
    The epidemic situation of tick-borne encephalitis and Lyme disease in the city of Tomsk http://www.ncbi.nlm.nih.gov/pubmed/9608213Lyme disease. Tracking an epidemic http://www.ncbi.nlm.nih.gov/pubmed/1870256
    Lyme disease: a multifocal worldwide epidemic http://www.ncbi.nlm.nih.gov/pubmed/2049148
    http://www.huffingtonpost.com/…/personal-health-_b_5461081.…
    http://www.cnn.com/2013/…/12/opinion/weintraub-lyme-disease/
    http://www.truth-out.org/…/26397-new-yorkers-call-lyme-dise…#
    http://www.projectcensored.org/21-lyme-disease-an-emerging…/
    http://lymediseasesecretpandemic.blogspot.com/
    http://www.topsecretwriters.com/…/lyme-disease-may-represe…/
    http://www.lyme-aware.org/…/1838-florida-lyme-disease-next-…
    http://abc30.com/archive/7344640/
    Misreported by the CDC- 10 times greater
    http://articles.mercola.com/…/…/2013/09/04/lyme-disease.aspx
    ABOUT US:
     

    We at azlyme.org try to make each meeting educational. Most meetings will feature a guest speaker who will share treatment or experiences related to Lyme Disease.
    The Arizona Lyme Disease Association is a 501(c) tax exempt
    entity under NEST Inc., organization run by volunteers.   We depend upon donations to help us offset the cost of advertising, maintaining the website, and educational projects promoting Lyme awareness.Should you choose to donate, please make your check payable to AzLDA and mail to: AzLDA PO Box 35637 Tucson, AZ 85740. You will receive a receipt for your donation, and of course all donations are tax deductible.
    LOCATING OUR MONTHLY
     

    MEETINGS IS EASY!
    The Tucson Chapter of the Arizona Lyme Association meets the second Saturday of the month. Please check the meeting reminders (emailed to you and on our website) to find the location and time of the meeting you plan to attend. Our meetings generally take place from 2-4pm at the Woods Memorial Library on 3455 N 1st Ave, Tucson (in the small conference room), or the Dusenberry River Branch Library, 5605 East River Road (Corner of River Rd. and Craycroft), on the ground floor section of the Whole Food Strip Mall. For questions and information email Paula at  Paulaazlyme@gmail.com or call Jane at 520-529-0221. Also check o


    ****************************
    PLEASE DIRECT ALL REQUESTS FOR INFORMATION ABOUT THIS EMAIL AND OUR TUCSON GROUP TO OUR CONTACT PERSONS JANE AND PAULA. Paula may be reached by email at
    paulaazlyme   @   gmail.com, and Jane by phone at (520) 529-0221. They can also help to see that your name will be placed on our Contact eList, ensuring that you will receive future monthly communications from our group.  Both are great resources!
    *****************************

    ITEM STILL NEEDED: Large screen, flat screen TV or office type projector that could be donated to the Woods Memorial
    Library, where our group often meets.   To donate please contact either the head Librarian at (520) 594-5445,Or Marie at 520-888-3646, Thank-you!
    *****************************

    The Ultimate Guide to Traveling With Chronic Pain
    ONGOING RECOMMENDED WEBSITES
    The first three websites have links to help find medical providers:
    www.lymediseaseassociation.org,
    www.ilads.org
    www.lymedisease.org.
    www.AzLyme.org  
    www.globallymealliance.org
    www.betterhealthguy.com
    www.danielcameronmd.com
    Www.enviromentalanalytics.net For mold
    and indoor air quality testing  
    https://natcaplyme.org/prevention/#preventing-tick-bites  
    You may want to share this site with friends and family!
    https://www.facebook.com/WhenYourChildHasLyme/?
    “WHEN YOUR CHILD HAS LYME: A Parent’s Survival Guide"
    https://www.iseai.org The International Society for Environmentally
    Acquired Illness
    www.https://lymediseaseassociation.org/about-lyme/lyme-kids-a-schools.This site offers practical guidance on how to prevent, screen, treat, and educate children about Lyme Disease.
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    LYME in the NEWS and HEALTH LINKS
    1.  Www.capvet.org/maps. Who says we don't have Lyme in AZ?  According to the Companion Animal Parasite Council there have been 26 positive cases of Lyme Disease, 31 positive cases of Anaplasmosis,  and 142 positive cases of Ehrlichiosis found in dogs in the state of Arizona during the month of January, 2019.
    Go to the website and hover over and click on various parts of any state.  Here you can see the incidence for each county.  The group says the actual incidence is a least 30 times that of what's diagnosed and reported on the map, since they are just testing a limited number of dogs.  If you sign up, you will receive a similar email monthly. It's helpful data to show to providers who may insist that we don't have Lyme in Arizona.
     

    2.   https://www.focusonlyme.org/2019-patient-forum  Focus On Lyme, is hosting its 2nd annual Patient Forum in Scottsdale, AZ on March 16, 2019, from 9am-12pm.  Cost is $25. This forum brings the top researchers and clinicians to share the latest in evidence-based treatment options. This is a great event for local physicians, patients and caregivers. Click on the website for information about speakers and ticket purchasing.
    3.  https://youtu.be/Fr61GV8JCYQ Dr. Al Miller is a retired Mayo Clinic physician who has a four part YouTube series on Lyme.  He addresses chronic lyme, the importance of proper testing, and also the potential role of Lyme in neurodegenerative diseases (ALS, Ms, Parkinsons).  Each part is about 4 minutes long.  
    4.  https://iseai.org
    New medical group ISEAI.org , Co-founded by Tucsonian Mary Ackerley, MD.  ISEAI is a nonprofit professional medical society that aims to raise awareness of the environmental causes of inflammatory illnesses and to support the recovery of individuals affected by these illnesses through the integration of clinical practice, education, and research.  They are preparing for May 3-5, 2019 Inaugural Conference near Phoenix, with a terrific great line up of speakers, Lyme Specialists Dr. Richard Horwitz MD and Dr. J. Burrascano MD.

    5.   HTTP://DANIELCAMERONMD.COM/BORRELIA-SPIROCHETE-MASTERS-EVADINGIMMUNESYSTEMFBCLID=IWAR3BMQL6GKW6BGNTL0B8A9TLDODI9FKIAEA-EQ-CYFACC1QXRJLRJNZYGAY.
     Read about how the Borrelia spirochetes are masters at evading immune system.
    6.  
    https://www.swissinfo.ch/eng/multimedia/swiss-tick-plague_nation-urged-to-vaccinate-against-tick-borne-disease/

    Ticks have become such a menace across Switzerland that the government is urging everyone to get vaccinated against one of the diseases they cause - early summer meningo-encephalitis (ESME). Health insurers will reimburse vaccination costs.

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    RECOMMENDED BOOKS
    1.“Beyond a Glass of Milk and a Hot Bath by Connie Strasheim. The author had battled severe insomnia for years. She shares insights and possible answers to this condition in her book, which is now out in paperback format. To learn more, see:https://conniestrasheim.org/new-products-
    2. Bitten: The Secret History of Lyme Disease and Biological Weapons”  by Kris Newby Hardcover – May 14, 2019  While on vacation on Martha’s Vineyard, Kris Newby was bitten by an unseen tick. That one bite changed her life forever, pulling her into the abyss of a devastating illness that took ten doctors to diagnose and years to recover.
    3. Toxic by Dr. Neil Nathan, MD is a resource book for patients and practitioners. Dr. Nathan has zeroed in on the realityof Toxicity and Chronic Disease, while providing cutting edge insights into the most effective therapies. This is a must read for anyone serious about healing chronic illness.
    4. “Lyme Disease Takes on Medicine” by Daniel Cameron (December 2017).
    5.“How Can I Get Better?”, Richard Horowitz (February 2017).This guidebook helps individuals identify their symptoms, and figure out where to go next. It is a follow-up to “Why Can't I Get Better?”.
    6.“The Everything Guide to Lyme Disease” by Rafal Tokarz, PhD, associate research scientist at the Center for Infection and Immunity at Columbia. Explains the debate over "chronic Lyme disease."
    7.“Lyme:The First Epidemic Of Climate Change by Mary Beth Pfeiffer (April,2018)
    8.“Recipes for Repair: The Expanded and Updated Second Edition: A 10 Week Program to Combat Chronic Inflammation and Identify Food Sensitivities” by Gail and Laura Piazza (2016)
    9.“The Ross Lyme Support Protocol: Lyme Disease Treatment Guideline for the Self-Starter” Kindle Edition by Marty Ross MD  
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    ABOUT US:
    We at azlyme.org  try to make each meeting educational. Most meetings will feature a guest speaker who will share treatment or experiences related to Lyme Disease.

    The Arizona Lyme Disease Association  is a 501(c) tax exempt
    entity under NEST Inc., organization run by volunteers.   We depend upon donations to help us offset the cost of advertising, maintaining the website, and educational projects promoting Lyme awareness.Should you choose to donate, please make your check payable to AzLDA and mail to: AzLDA PO Box 35637 Tucson, AZ 85740. You will receive a receipt for your donation, and of course all donations are tax deductible.


     

    UPDATES FROM PROMINENT LYME ORGANIZATIONS:
    FROM www.ILADS.org (International Lyme and Associated Disease Society)
    ILADS is a nonprofit, international, multidisciplinary medical society dedicated to the appropriate diagnosis and treatment of Lyme and associated diseases through research, education and policy.
     

    1.https://www.ilads.org/ilads-conference/chicago-2018/
     42 minute video with Joseph Burrascano, MD "The History of Lyme Disease"
    2.http://www.ilads.org/lyme/lyme-quickfacts.php.
    Reviews Lyme Disease Facts. Short term treatment courses have resulted in the upwards of a 40% relapse rate, especially if treatment is delayed.
    3.http://www.ilads.org/education/member-publications.php.
    This Link will allow you to download papers and presentations from ILADS.
    4.https://www.ncbi.nlm.nih.gov/pubmed/28887186.
    To test or not to test? Laboratory support for the diagnosis of Lyme borreliosis.  2018 Journal Publication. A Position Paper
    5.https://www.dovepress.com/aggressiveness-violence-homicidality-homicide-and-lyme-disease-peer-reviewed-article-NDT7.  Peer reviewed article on aggressive violence as it relates to Lyme.
    6.  https://www.ilads.org/research-literature/lyme-disease-basics-for-providers/.
      Are your health care providers open or interested in learning more about Lyme Disease? Refer them to ILADS.org. Here they can also learn about the Lyme Fundamentals Course.

    7.  The 20th Annual Scientific Conference will be held on Thursday, October 31 - Sunday, November 3, 2019, at the Westin Copley
    Place in Boston, MA.
    8.  https://www.ilads.org/research-literature/leading-research/  Resource for published research articles authored by ILADS members.

    From  www.lymediseaseassociation.org (LDA):

    1. Need the name of a Lyme Literate MD or healthcare practitioner ?  This site will help you find one. The LDA offers information on all things Lyme including  ( but not limited to) symptoms, treatment, diagnosis, physicians, educational material, legislation, and policy making.  
    2.Http://rynoskin.com.  Chemical Free Clothing for Tick Bite Prevention. There are many different kinds of clothing available to help in tick bite prevention. One of those is chemical free. Rynoskin is ultralight and worn underneath regular clothing. It  prevents ticks, mosquitoes, chiggers, black flies, ants, no-see-ums, and other biting insects from entering through clothing to reach the skin to feed/bite. Clothing items include: Shirts, pants, hoods, gloves and socks.
    3.  
    https://www.lymediseaseassociation.org/about-lyme/cases-stats-maps-a-graphs.  Check out the numbers of Lyme Disease cases in the US.  The Lyme Disease Association Inc. (LDA) has been working for 28 years to stop the spread of Lyme and TBD and to find a cure for chronic Lyme disease. LDA has educated multi-state officials from legislators to governors to health departments and continues to work with county and local officials who often are looking for ways to control tick-borne diseases in their specific areas, which may be more heavily endemic than the state at large.
    4.   https://www.lymediseaseassociation.org/images/NewDirectory/Resources/Printables/Current/LDA_SymptomList.pdf.    Lyme Disease Signs and Symptoms updated2017
    5.  https://lymediseaseassociation.org/conference/prior-scientific-conference
    The Lyme Disease Association has been providing fully accredited continuing medical education (CME) Lyme & tick-borne diseases conferences since 1999. Each conference has featured more than a dozen national and international researchers and physicians speaking on a wide variety of topics including epidemiology, the organisms causing tick-borne diseases, proteins, diagnosis, treatments, cognitive difficulties, vaccines, veterinary issues, ticks, and mapping of genomes.  

     FROM www.lymedisease.org. (LDo):
    Note: You can join lymedisease.org.  Members of LDo enjoy exclusive access to online issues of The Lyme Times, one of the most respected publications in the industry covering Lyme
    disease and other tick-borne diseases. This premier, quarterly magazine looks at issues that aim to educate and improve patients’ lives.
    1.    https://www.lymedisease.org/better-lyme-diagnostic-tests/
     New Lab Tests for Lyme Although the CDC has not promoted any improvements in testing since 1994, new Lyme Diagnostic tests are finally becoming available through private labs. One lab, IGeneX, has developed two new immunoblot tests capable of detecting multiple species of Borrelia . The “Lyme ImmunoBlot” test is approved for use in all states including New York. The “TBRF ImmunoBlot” is currently undergoing validation review by New York State, Department of Health and thus is available to all US residents outside of New York. Go to the website above to view a list of the various species of Borrelia that the new tests are capable of detecting. What’s most disturbing about these numbers is the huge discrepancy between the positive test results and the number of cases reported by the CDC.

    2.  More tick bites = more sick people
    Ticks have undergone a population explosion over the past two decades, with Ixodes ticks, the primary source of Lyme disease, now found in nearly 50% more U.S. counties than in 1996.The reasons for the explosion of tick populations involves complex human and environmental factors and varies by geographic region. Experts feel the major contributing factors are: warming winter temperatures,migrating bird patterns, changes in landscape including land use and fragmented forests, abundance of vertebrate hosts (mice, deer, squirrels, etc.), reductions in natural predators (foxes, bobcats, etc.), invasive and non-native plant species, and accidental transport by humans (pets and livestock).
    3.https://www.lymedisease.org/lyme-disease-symptom-checklist/
    Do you have Lyme Disease? Check your symptoms.   This is the message we have used for AzLDA's (Tucson group)  public service billboard(s) along 1-10 near Eloy (still up) and was used on Speedway Blvd in 2017.  As funds allow we will be using it or a similar one again for our May Lyme Disease awareness month project.  
    4.https://www.lymedisease.org/personalized-lyme-disease-treatment/  34%of patients are high treatment responders (from mylymedata.org) —meaning that they reported that after taking antibiotics their symptoms improved moderately to
    a very great deal. This is the type of information that patients want to know and that is why LDo. conducted this study.
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    LOCATING OUR MONTHLYMEETINGS IS EASY! The Tucson Chapter of the Arizona Lyme Association meets the second Saturday of the month. Please check the meeting reminders (emailed to you and on our website) to find the location and time of the meeting you plan to attend. Our meetings generally take place from 2-4pm at the Woods Memorial Library on 3455 N 1st Ave, Tucson (in the small conference room), or the Dusenberry River Branch Library, 5605 East River Road (Corner of River Rd. and Craycroft), on the
    ground floor section of the Whole Food Strip Mall. For questions and information email Paula at Paulaazlyme@gmail.com or call Jane at (520) 529-0221. Also check out our website at
    www.azlyme.org

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    Jane Beecher's cookbook entitled, The Strong Women’s Cookbook available on Amazon. The book includes autobiographical stories of women who have struggled and are struggling with Lyme Disease and Fibromyalgia.

    Please consider pasting, "The Strong Women's Cookbook" to your Facebook Page, so that others may know about it.
    All profits will go towards the education of Lyme and Fibromyalgia doctors and patients
    The book is available on Amazon.com
    You can reach Jane at 520-529-0221 with any questions you may have.

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    AZLDA
    PO Box 35637
    Tucson AZ 85740

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     UPCOMING EVENTS

  • We hope to see you there!