Arizona Online Support Group

ArizonaLyme
is an online discussion group at Yahoo Health Groups
 click below (will open a new page/tab)

This is a reference and support group for Lyme (and associated diseases) patients, their care givers, medical professionals, and anyone else interested in knowing more about this disease and how to cope with it. We are a service of the Arizona Lyme Disease Association AZLDA.

 

 
Larry and Marie presenting Dr.Cowden with an appreciation plaque for his talks on autism
and Lyme Disease treatment protocols at
the Tucson support groups meeting Jan. 2009.
 
To see more photos of this
and other events

MEETING INFORMATION:

 

Please refrain from wearing fragrances to the meeting,
in respect to our chemically sensitive members.

SPECIAL Meeting Notice


 

Phoenix Chapter

NEW MEETING GROUP IN TEMPE

                                                           Monthly support meeting:

 

Pyle Adult Recreation Center | 655 E. Southern Ave. | Tempe, AZ 85282
602-635-0005www.tempe.gov/pyle
*Southwest corner of Rural & Southern

Tempe Support Group Meeting

1st Saturday of each Month 1-3pm

2017

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What: September Community Gathering (Support Group)

When: Saturday, September 2, 2017 from 1-3pm

Where: Pyle Adult Recreation Center – Prescott Room

               655 East Southern Avenue Tempe, AZ 85282

What: Open format. Group discussion of various topics.

Who: Those suffering from Lyme Disease and any/all other vector borne diseases are welcome to attend. Feel free to bring your family and/or friends. No practitioners will be allowed entrance.

Admittance: The suggested donation for admittance is between $3-$5 dollars per person. Any donation of $20 dollars or more is a tax write off.

Notes: Please refrain from wearing any scents with respect for our chemically sensitive individuals.

Further Information: Please contact azlymedisease@gmail.com or 602.635.0005 for any questions/comments/concerns.


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What:  Dr. Jennifer Smith, NMD will be presenting on topics such as Chronic Inflammatory Response Syndrome and the biotoxin pathway and how this relates to Lyme Disease/MSIDS as well as Mast Cell Activation Disorder.

When: Saturday, October 7, 2017 from 1-3pm

Where: Pyle Adult Recreation Center – Prescott Room

            655 East Southern Avenue Tempe, AZ 85282

Who: Those suffering from Lyme Disease/MSIDS are welcome to attend. Feel free to bring your family and/or friends. Practitioners will be allowed entrance. This meeting is OPEN TO THE PUBLIC.

Admittance: The suggested donation for admittance is between $3-$5 dollars per person. Any donation of $20 dollars or more is a tax write off.

Notes: Please refrain from wearing any scents with respect for our chemically sensitive individuals.

Contact: azlymedisease@gmail.com or 602.635.0005 for any questions/comments/concerns.

About:

 

Jennifer Smith is a Naturopathic Physician, who currently practices at Lifestream Wellness Clinic in Scottsdale, AZ.  She has extensive training in complex chronic disease, Lyme disease and chronic inflammatory response syndrome (CIRS).  She is a Lyme literate physician and member of the International Lyme and Associated Diseases Society (ILADS).  She is certified by Dr Ritchie Shoemaker for the treatment of biotoxin-mediated illness and certified in environmental medicine.   

She received her Bachelor of Science degree in Psychology with a minor in Religious Studies from Arizona State University.  She completed her Doctorate in Naturopathic Medicine from Southwest College of Naturopathic Medicine.   After graduating she completed a 6-month internship with Dr Deborah Ardolf ND in immunology and autoimmune disease, and then was granted a one-year residency at the American Center for Biological Medicine with Dickson Thom, DDS, ND and Jeoffrey Drobot, NMD.

Dr. Smith chose to become certified by Dr Shoemaker in biotoxin mediated illness after her best friend became deathly ill due to an exposure to mold.  It took almost 2 years before her friend was able to find a physician that could help her.  This physician, a certified “Shoemaker” physician, was able to restore her health.   

After hearing Dr. Shoemaker lecture on CIRS and the biotoxin pathway, it resonated with her.  It felt like the answer to a missing piece that she was witnessing in many of her patients and completely translatable to Lyme disease.   Lyme disease and mold illness tend to go hand in hand because they both activate the same biotoxin pathway.  With each presenting a similar set of signs and symptoms, she has learned it is often necessary to take a step back and look at the inflammatory response during treatment.  With this approach she has found that many of her Lyme patients are able to regain their health without the use of long-term antibiotic therapies.

With a blend of naturopathic approaches and conventional treatment styles, Dr Smith incorporates treatment not only to address physical ailments but also to address the spiritual and emotional wellbeing of her patients. Her drive and compassion to get to the underlying cause of illness is what keeps her constantly searching for innovative ideas and solutions to help her patients regain their health.

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 Our website is: www.azlyme.org
 

Questions can be emailed to: azlymedisease@gmail.com 
 
The Facebook group is Arizona Lyme Disease Association Support Network. Please follow us on Facebook also, at Arizona Lyme Disease Association

For more information please contact: Michelle.Louie@azlyme.org 

Tucson Chapter
                                                           Monthly support meeting:

 

The first hour is dedicated to an educational topic,
the second hour is for group and emotional support.

Location: River Center Branch Library. Library is located at 5605 E. River Rd
Located at the northeast corner of River and Craycroft, on the
ground floor section on the northeast corner of the shopping strip.
Tucson area information-    Email:

Wellness First located at 3861 N. First Ave., Tucson, AZ


2016 Schedule
Suggested Meeting Donation $5.
PLEASE NOTE:
Meeting locations may vary:
Dusenberry River Branch Library
5605 E. River Road
Tucson, AZ
(meetings at Dusenberry Library are 2-4 pm)
or
Wellness First
3861 N. First Ave.
Tucson, AZ
(meetings at Wellness First are 3-5 pm)
 
LOCATING OUR MONTHLY MEETINGS IS EASY
Please check the meeting reminders to find the location and time of the meeting you plan to attend.
Our meetings generally take place at one of two locations:

1.Dusenberry River Branch Library, 5605 East River Road, (Northeast Corner of River and Craycroft, on Ground Floor Section of Whole Foods Strip Mall.)
Meetings at Dusenberry River Branch Library are scheduled from 2pm til 4pm unless otherwise noted.
 OR

2. Wellness First, 3861 N. First Avenue
(the address is the only signage on the building...look for LARGE NUMBERS on WEST SIDE of road) Location is one block south of Roger Road on the west side of First Avenue. There is a large patio wall with address visible from the street. Also, there is a red mailbox right next to the driveway.
 

  • Summer 2017

     
    UPCOMING MEETINGS
    September 9th, Saturday
     
    Location: Dusenberry River Branch Library
    Meeting Time 2-4PM
     
    Agenda:
     2-3 pm  Join us in a discussion of the book "The Dysautonomia Project: Understanding Autonomic Nervous System Disorders for Physicians and Patients, led by group members."
    Dysautonomia is chronic, disabling, often not recognized, misdiagnosed, and is associated with other conditions including,.chronic fatigue syndrome, fibromyalgia, and Ehlers-Danlos Syndrome.
     
    Dysautonomia is a multi-system, chronic disorder and includes POTS, autonomically mediated syncope, systemic mast cell syndrome, and chronic orthostatic intolerance.
     
    Educating ourselves can lead to proper diagnosis, treatment, self care, and a better quality of life.
    3-4 pm  Support and sharing
     
    October 14th, Saturday  2-4pm
     
    Location:  Dusenberry River Branch Library                  
     
    2-3 pm - Topic to be announced
     
    3-4 pm - Support and sharing 
     
    November 11th, Saturday 2-4 pm
     
    Location: TBA
    Time: 2-4pm
    Agenda:
    2-3pm-  "Gratitude",  facilated by Donna Hoch
    3-4pm - Support and Sharing

     
    LYME IN THE NEWS AND VIEWS
    1. Watch/listen to  Dr. Christine Green's 37 minute talk on Lyme Stealth Pathogens presented at the recent MyLymeData California conference www.lymedisease.org   LYMEPOLICYWONK: Video of Dr. Christine Green’s MyLymeData talk. Go to lymedisease.org and scroll, down to Dr. Christine’s talk.
     
    2. On June 29, 2017, Lord Astor of Hever gave a speech about Lyme in the Queens Speech debate in Parliament in the UK. Lord Astor called for mandatory training of doctors in Lyme disease and castigated the IDSA guidelines that British health officals follow. Lord Astor of Hever's daughter suffers with Lyme.  The speech gained international coverage as US charity lymedisease.org reported on the speech as did Dr. Richard Horowitz,  a noted Lyme Literate physician and author from the United States.
     
    You can access Lord Astor of Hever's speech here:
     
    3. www.ilads.org Offers basic information about Lyme, ILADS position paper, officers and directors, events, articles and presentations, related sites and membership application.
     
    4. MyLymeData.org needs your involvement. Help collect valuable data on Lyme disease. Your confidential input will help to make a huge contribution towards finding a cure.    Our goal is 500 Lyme patients from Arizona be registered by the end of the year.  This research is expected to gather more data about Lyme disease than any previously published research study.  Its goal is to build a patient-centered research community.  That’s what patient-powered research is about! For an example on the survey's outcome relating to the frequency of misdiagnosis with other neurological conditions see a blog written by Lorraine Johnston https://www.lymedisease.org/lymepolicywonk-antibiotics-ms/
     
    5. The 18th Annual Lyme & Tick-Borne Diseases Scientific Conference will be held September 23 & 24, 2017 in Philadelphia, PA at the Hilton Penn’s Landing.  Past conferences  have included the top researchers in the US and the world.  Look for more information on lymedisease.org
     
    Recommended websites for those desiring to know more about Lyme Disease: www.lymediseaseassociation.org    www.ilads.org  www.lymedisease.org. andwww.needymeds.org (which may offer assistance to those struggling with the costs of medications).   

     
     LYME IN THE NEWS 
      *Huffington Post has a very informative article entitled, “What the Media Don't Tell You About Lyme Disease (But Should)".  The article exams the number of patients contracting Lyme in a year in the US, and compares that to the number of patients with AIDS and Zika.  Read the full article and see the discrepancy in dollars spent for research and treatment of these patients. You will certainly want to pass it on to others. Http://www.huffingtonpost.com/entry/what-the-media-dont-tell-you-about-lyme-diseasebut_us_5900678fe4b06feec8ac91f3 *

     
    *MyLymeData.org needs your involvement. Help collect valuable data on Lyme disease. Your confidential input will help to make a huge contribution towards finding a cure. Currently we have approximately 80 participants from Arizona.  Our goal is 500 from Arizona by the end of the year.  There are well over 7,000 participants nationally and growing.  MyLymeData (www.mylymedate.org) uses big data research tools that allow patients to quickly and privately pool their data to determine which treatments work best.  This research is expected to gather more data about Lyme disease than any previously published research study.  Its goal is to build a patient-centered research community.  That’s what patient-powered research is about!For an example on the survey's outcome relating to the frequency of misdiagnosis with other neurological conditions see a blog written by Lorraine Johnston https://www.lymedisease.org/lymepolicywonk-antibiotics-ms/ *The Lyme Disease Association announces that Richard Horowitz, MD, has released his second book, “How Can I Get Better? An Action Plan for Treating Resistant Lyme and Chronic Disease”.  This edition contains important scientific updates on Lyme, other borrelia species, associated co-infections (such as Babesia, Bartonella, rickettsia infections, and Tularemia) with a new chapter on pulsing and “persisters.”

     
    *The Lyme Disease Association announces that its 18th Annual Lyme & Tick-Borne Diseases Scientific Conference will be held September 23 & 24, 2017 in Philadelphia, PA at the Hilton Penn’s Landing.  This series of past conferences held in cities across the US have included the top researchers in the US and the world on topics that include Lyme disease testing, the mechanisms of disease persistence, Lyme disease treatment and antibiotics, biomarkers, neurologic and cardiac Lyme, case studies, other tick-borne diseases, epidemiology, and tick control.

     
    CURRENT VIDEOS YOU MAY WANT TO VIEW:   
    Watch/listen to  Dr. Christine Green's 37 minute talk on Lyme Stealth Pathogens presented at the the recent MyLymeData California conference www.lymedisease.org   LYMEPOLICYWONK: Video of Dr. Christine Green’s MyLymeData talk. Go to lymedisease.org and scroll,down to Dr. Christine’s talk.

     
     Watch: Lord Astor of Hever: British House of Lords speech today - UK 29-06-2017Lord Astor called for mandatory training of doctors in Lyme disease, and castigated the IDSA guidelines…

     

     
    Recommended websites for those desiring to know more about Lyme Disease: www.lymediseaseassociation.org    www.ilads.org  www.lymedisease.org. andwww.needymeds.org (which may offer assistance to those struggling with the costs of medications.)   

     

    MyLymeData (www.mylymedate.org) uses big data research tools that allow patients to quickly and privately pool their data to determine which treatments work best.  This research is expected to gather more data about Lyme disease than any previously published research study.  Its goal is to build a patient-centered research community.  That’s what patient-powered research is about!

    For an example on the survey's outcome relating to the frequency of misdiagnosis with other neurological conditions see a blog written by Lorraine Johnston https://www.lymedisease.org/lymepolicywonk-antibiotics-ms/

    We need your involvement. Help collect valuable data on Lyme disease. Your confidential input will help to make a huge contribution towards finding a cure. Currently we only have 72 participants from Arizona. Our goal is 500 by the end of the year. There are over 7,000 participants nationally and growing. 
     

                                                                               -----------------------------

     

    NOTE OF INTEREST

    From lymediseaseassociation.org:

    The Lyme Disese Association announces that Richard Horowitz, MD, whose first book reached New York Times #1 Beseller in Science, just released his second book, “How Can I Get Better? An Action Plan for Treating Resistant Lyme and Chronic Disease” through St. Martin’s Press, February 2017. This edition contains important scientific updates on Lyme, other borrelia species, associated co-infections (such as Babesia, Bartonella, rickettsial infections, and Tularemia) with a new chapter on pulsing and “persisters.”
     


     

    The Lyme Disease Association announces its 18th annual Lyme & Tick-Borne Diseases scientific conference will be held September 23 & 24, 2017. It DrFallonSm 640x794Brian Fallon, MD, Columbia University, Conference Directoris being held in Philadelphia, PA at the Hilton Penns Landing on the banks of the Delaware. Columbia University jointly provides the conference. This series of past conferences held in cities across the US have included the top researchers in the US and the world on topics that include Lyme disease testing, the mechanisms of disease persistence, Lyme disease treatment and antibiotics, biomarkers, neurologic and cardiac Lyme, case studies, other tick-borne diseases, epidemiology, and tick control. We will post 2017 topics in the upcoming months. Mark your calendars.  

                                                                        -----------------------------


     

    TRENDING LYME NEWS:  

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    Jane Beecher's cookbook entitled, The Strong Women’s Cookbook available on Amazon. The book includes autobiographical stories of women who have struggled and are struggling with Lyme Disease and Fibromyalgia.

    Please consider pasting, "The Strong Women's Cookbook" to your Facebook Page, so that others may know about it.
    All profits will go towards the education of Lyme and Fibromyalgia doctors and patients
    The book is available on Amazon.com
    You can reach Jane at 520-529-0221 with any questions you may have.

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    AZLDA
    PO Box 35637
    Tucson AZ 85740

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     UPCOMING EVENTS

  • We hope to see you there!