Saturday, May 11, 2019 Tucson
meeting will be canceled this month
Location: Woods Memorial Library
2-4 pm: Topic: TBA
Saturday, June 8, 2019
2-4 PM: Topic: TBA
ALL REQUESTS FOR INFORMATION ABOUT THIS EMAIL AND OUR TUCSON GROUP
TO OUR CONTACT PERSONS JANE AND PAULA.
Paula may be reached by email at
Jane by phone at (520) 529-0221. They can also help to see that your
name will be placed on our Contact eList, ensuring that you will
receive future monthly communications from our group. Both are
ITEM STILL NEEDED: Large screen, flat screen
TV or office type projector that could be donated to the Woods
Library, where our group often meets. To donate please contact
either the head Librarian at (520) 594-5445,Or Marie at
The Ultimate Guide to Traveling With Chronic Pain
ONGOING RECOMMENDED WEBSITES
The first three websites have links to help find medical providers:
Www.enviromentalanalytics.net For mold
and indoor air quality testing
You may want to share this site with friends and family!
“WHEN YOUR CHILD HAS LYME: A Parent’s Survival Guide"
https://www.iseai.org The International Society for
site offers practical guidance on how to prevent, screen, treat, and
educate children about Lyme Disease.
LYME in the NEWS and HEALTH
1. Www.capvet.org/maps. Who
says we don't have Lyme in AZ? According to the Companion Animal
Parasite Council there have been 26 positive cases of Lyme Disease,
31 positive cases of Anaplasmosis, and 142 positive cases of
Ehrlichiosis found in dogs in the state of Arizona during the month
of January, 2019.
Go to the website and hover over and click on various parts of any
state. Here you can see the incidence for each county. The
group says the actual incidence is a least 30 times that of what's
diagnosed and reported on the map, since they are just testing a
limited number of dogs. If you sign up, you will receive a similar
email monthly. It's helpful data to show to providers who may insist
that we don't have Lyme in Arizona.
Focus On Lyme, is hosting its 2nd annual Patient Forum in
Scottsdale, AZ on March 16, 2019, from 9am-12pm. Cost is $25. This
forum brings the top researchers and clinicians to share the latest
in evidence-based treatment options. This is a great event for local
physicians, patients and caregivers. Click on the website for
information about speakers and ticket purchasing.
Dr. Al Miller is a retired Mayo Clinic physician who has a four part
YouTube series on Lyme. He addresses chronic lyme, the importance
of proper testing, and also the potential role of Lyme in
neurodegenerative diseases (ALS, Ms, Parkinsons). Each part is
about 4 minutes long.
New medical group ISEAI.org , Co-founded by Tucsonian Mary Ackerley,
MD. ISEAI is a nonprofit professional medical society that aims to
raise awareness of the environmental causes of inflammatory
illnesses and to support the recovery of individuals affected by
these illnesses through the integration of clinical practice,
education, and research. They are preparing for May 3-5, 2019
Inaugural Conference near Phoenix, with a terrific great line up of
speakers, Lyme Specialists Dr. Richard Horwitz MD and Dr. J.
Read about how the Borrelia spirochetes are masters at evading
Ticks have become such a menace across Switzerland that the
government is urging everyone to get vaccinated against one of the
diseases they cause - early summer meningo-encephalitis (ESME).
Health insurers will reimburse vaccination costs.
1.“Beyond a Glass of Milk and a
Hot Bath” by Connie Strasheim. The author had battled
severe insomnia for years. She shares insights and possible answers
to this condition in her book, which is now out in paperback format.
To learn more, see:https://conniestrasheim.org/new-products-
2. “ Bitten: The Secret History of Lyme
Disease and Biological Weapons” by Kris Newby Hardcover – May 14,
2019 While on vacation on Martha’s Vineyard, Kris Newby was bitten
by an unseen tick. That one bite changed her life forever, pulling
her into the abyss of a devastating illness that took ten doctors to
diagnose and years to recover.
3. “Toxic” by Dr. Neil Nathan, MD
is a resource book for patients and practitioners. Dr. Nathan has
zeroed in on the realityof Toxicity and Chronic Disease, while
providing cutting edge insights into the most effective therapies.
This is a must read for anyone serious about healing chronic
4. “Lyme Disease Takes on Medicine” by
Daniel Cameron (December 2017).
5.“How Can I Get Better?”, Richard Horowitz
(February 2017).This guidebook helps individuals identify their
symptoms, and figure out where to go next. It is a follow-up to “Why
Can't I Get Better?”.
6.“The Everything Guide to Lyme Disease” by
Rafal Tokarz, PhD, associate research scientist at the Center for
Infection and Immunity at Columbia. Explains the debate over
"chronic Lyme disease."
7.“Lyme:The First Epidemic Of Climate Change”
by Mary Beth Pfeiffer (April,2018)
8.“Recipes for Repair: The Expanded and
Updated Second Edition: A 10 Week Program to Combat Chronic
Inflammation and Identify Food Sensitivities” by Gail and Laura
9.“The Ross Lyme Support Protocol: Lyme Disease Treatment
Guideline for the Self-Starter” Kindle Edition by Marty
azlyme.org try to make
each meeting educational. Most meetings will feature a guest speaker
who will share treatment or experiences related to Lyme Disease.
The Arizona Lyme Disease Association
is a 501(c) tax exempt
entity under NEST Inc., organization
run by volunteers. We depend upon donations to help us offset the
cost of advertising, maintaining the website, and educational
projects promoting Lyme awareness.Should you choose to donate,
please make your check payable to AzLDA and mail to: AzLDA PO Box
35637 Tucson, AZ 85740. You will receive a receipt for your
donation, and of course all donations are tax deductible.
UPDATES FROM PROMINENT LYME ORGANIZATIONS:
(International Lyme and Associated Disease Society)
ILADS is a nonprofit, international, multidisciplinary medical
society dedicated to the appropriate diagnosis and treatment of Lyme
and associated diseases through research, education and policy.
42 minute video with Joseph Burrascano, MD "The History of Lyme
Reviews Lyme Disease Facts. Short term treatment courses have
resulted in the upwards of a 40% relapse rate, especially if
treatment is delayed.
This Link will allow you to download papers and presentations from
To test or not to test? Laboratory support for the diagnosis of Lyme
borreliosis. 2018 Journal Publication. A Position Paper
Peer reviewed article on aggressive violence as it relates to Lyme.
Are your health care providers open or interested in learning more
about Lyme Disease? Refer them to ILADS.org. Here they can also
learn about the Lyme Fundamentals Course.
7. The 20th Annual Scientific Conference will be held on Thursday,
October 31 - Sunday, November 3, 2019, at the Westin Copley
Place in Boston, MA.
Resource for published research articles authored by ILADS members.
1. Need the name of a Lyme Literate MD or healthcare practitioner ?
This site will help you find one. The LDA offers information on all
things Lyme including ( but not limited to) symptoms, treatment,
diagnosis, physicians, educational material, legislation, and policy
Chemical Free Clothing for Tick Bite Prevention. There are many
different kinds of clothing available to help in tick bite
prevention. One of those is chemical free. Rynoskin is ultralight
and worn underneath regular clothing. It prevents ticks,
mosquitoes, chiggers, black flies, ants, no-see-ums, and other
biting insects from entering through clothing to reach the skin to
feed/bite. Clothing items include: Shirts, pants, hoods, gloves and
Check out the numbers of Lyme Disease cases in the US. The Lyme
Disease Association Inc. (LDA) has been working for 28 years to stop
the spread of Lyme and TBD and to find a cure for chronic Lyme
disease. LDA has educated multi-state officials from legislators to
governors to health departments and continues to work with county
and local officials who often are looking for ways to control
tick-borne diseases in their specific areas, which may be more
heavily endemic than the state at large.
Lyme Disease Signs and Symptoms updated2017
The Lyme Disease Association has been providing fully accredited
continuing medical education (CME) Lyme & tick-borne diseases
conferences since 1999. Each conference has featured more than a
dozen national and international researchers and physicians speaking
on a wide variety of topics including epidemiology, the organisms
causing tick-borne diseases, proteins, diagnosis, treatments,
cognitive difficulties, vaccines, veterinary issues, ticks, and
mapping of genomes.
Note: You can join
Members of LDo enjoy exclusive access to online issues of The
Lyme Times, one of the most respected publications in the
industry covering Lyme
disease and other tick-borne diseases. This premier, quarterly
magazine looks at issues that aim to educate and improve
New Lab Tests for Lyme Although the CDC has not promoted any
improvements in testing since 1994, new Lyme Diagnostic tests
are finally becoming available through private labs. One lab,
IGeneX, has developed two new immunoblot tests capable of
detecting multiple species of Borrelia . The “Lyme ImmunoBlot”
test is approved for use in all states including New York. The
“TBRF ImmunoBlot” is currently undergoing validation review by
New York State, Department of Health and thus is available to
all US residents outside of New York. Go to the website above to
view a list of the various species of Borrelia that the new
tests are capable of detecting. What’s most disturbing about
these numbers is the huge discrepancy between the positive test
results and the number of cases reported by the CDC.
2. More tick bites = more sick people
Ticks have undergone a population explosion over the past two
decades, with Ixodes ticks, the primary source of Lyme disease,
now found in nearly 50% more U.S. counties than in 1996.The
reasons for the explosion of tick populations involves complex
human and environmental factors and varies by geographic region.
Experts feel the major contributing factors are: warming winter
temperatures,migrating bird patterns, changes in landscape
including land use and fragmented forests, abundance of
vertebrate hosts (mice, deer, squirrels, etc.), reductions in
natural predators (foxes, bobcats, etc.), invasive and
non-native plant species, and accidental transport by humans
(pets and livestock).
Do you have Lyme Disease? Check your symptoms. This is the
message we have used for AzLDA's (Tucson group) public service
billboard(s) along 1-10 near Eloy (still up) and was used on
Speedway Blvd in 2017. As funds allow we will be using it or a
similar one again for our May Lyme Disease awareness month
34%of patients are high treatment responders (from
—meaning that they reported that after taking antibiotics their
symptoms improved moderately to
a very great deal. This is the type of information that patients
want to know and that is why LDo. conducted this study.
LOCATING OUR MONTHLYMEETINGS
IS EASY! The Tucson Chapter of the Arizona Lyme
Association meets the second Saturday of the month. Please check
the meeting reminders (emailed to you and on our website) to
find the location and time of the meeting you plan to attend.
Our meetings generally take place from 2-4pm at the Woods
Memorial Library on 3455 N 1st Ave, Tucson (in the small
conference room), or the Dusenberry River Branch Library, 5605
East River Road (Corner of River Rd. and Craycroft), on the
ground floor section of the Whole Food Strip Mall. For questions
and information email Paula at
Paulaazlyme@gmail.com or call Jane at (520)
529-0221. Also check out our website at